Our brave Mum passed away on the 21st June 2025. Mum lived and enjoyed many years despite this condition. The organisation are supportive to individuals and also family members and are essential to helping the medical profession and individuals understand more about this rare condition and how it can be managed.
Raised so far
Our brave Mum passed away on the 21st June 2025. Mum lived and enjoyed many years despite this condition. The organisation are supportive to individuals and also family members and are essential to helping the medical profession and individuals understand more about this rare condition and how it can be managed.
You are fundraising as part of team:
You are about to remove the message and all replies. Do you want to proceed?
